With More Healthcare Communications Technology, Let’s Turn More Time into Human Factors

All those of us who work in medical settings are deeply familiar with the increasing requirements for more documentation and administrative work designed to comply with government regulations and healthcare insurance rules.

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In theory, major frameworks like the Joint Commission (JC) in the US are setting common standards to improve the quality and safety of care, with an understandable focus on reducing returns to the hospital for infections or other complications. The JC has been so successful, as far as measured results, that hundreds of hospitals and medical centers around the world are investing in educational and management programs enabling them to be certified, opening new doors to international patients with reimbursement at a lower cost to public and private payors.

In theory, comprehensive privacy compliance, like HIPAA, and standard system protocols, like HL7, enable software that allows for system integrity and software integration so the process of providing care can be strengthened, errors reduced, and costs controlled.

In practice, however, the pervasive nature of the combination of all these technologies, combined with overlay Electronic Medical Records (EMR), e-prescribing, real time voice, video and messaging applications runs the risk of turning doctors, nurses and others who entered the medical profession to help human beings into “humanoids” who spend more time at keyboards, computers, smartphones and other devices, typing and tapping throughout their shifts.

For many, so much time spent on the “digital paperwork” (along with actual paperwork which may also be required) contributes to burn-out and a sense of being overwhelmed by tasks so much so that there is less and less time for interacting with patients and thinking through problems with colleagues to serve those patients better.

As software improves following decades of this major move to the digitalization of providing and paying for care, we believe it is a perfect time to step back and rethink the critical importance of “human factors” in healthcare.

Human factors bring us back to the fundamentals of quality care – starting with listening, engaging in conversation, showing compassion, and being able to read the non-verbal clue patients share.

As more mundane tasks are automated, and new models for teamwork and management of necessary administrative functions are innovated, we have a moment in time to rediscover the joys and benefits of being able to spend time with patients and their families during traumatic times and over the long haul when managing chronic conditions.

All those of us who work in medical settings are deeply familiar with the increasing requirements for more documentation and administrative work designed to comply with government regulations and healthcare insurance rules.

In theory, major frameworks like the Joint Commission (JC) in the US are setting common standards to improve the quality and safety of care, with an understandable focus on reducing returns to the hospital for infections or other complications. The JC has been so successful, as far as measured results, that hundreds of hospitals and medical centers around the world are investing in educational and management programs enabling them to be certified, opening new doors to international patients with reimbursement at a lower cost to public and private payors.

In theory, comprehensive privacy compliance, like HIPAA, and standard system protocols, like HL7, enable software that allows for system integrity and software integration so the process of providing care can be strengthened, errors reduced, and costs controlled.

In practice, however, the pervasive nature of the combination of all these technologies, combined with overlay Electronic Medical Records (EMR), e-prescribing, real time voice, video and messaging applications runs the risk of turning doctors, nurses and others who entered the medical profession to help human beings into “humanoids” who spend more time at keyboards, computers, smartphones and other devices, typing and tapping throughout their shifts.

For many, so much time spent on the “digital paperwork” (along with actual paperwork which may also be required) contributes to burn-out and a sense of being overwhelmed by tasks so much so that there is less and less time for interacting with patients and thinking through problems with colleagues to serve those patients better.

As software improves following decades of this major move to the digitalization of providing and paying for care, we believe it is a perfect time to step back and rethink the critical importance of “human factors” in healthcare.

Human factors bring us back to the fundamentals of quality care – starting with listening, engaging in conversation, showing compassion, and being able to read the non-verbal clue patients share.

As more mundane tasks are automated, and new models for teamwork and management of necessary administrative functions are innovated, we have a moment in time to rediscover the joys and benefits of being able to spend time with patients and their families during traumatic times and over the long haul when managing chronic conditions.

All those of us who work in medical settings are deeply familiar with the increasing requirements for more documentation and administrative work designed to comply with government regulations and healthcare insurance rules.

In theory, major frameworks like the Joint Commission (JC) in the US are setting common standards to improve the quality and safety of care, with an understandable focus on reducing returns to the hospital for infections or other complications. The JC has been so successful, as far as measured results, that hundreds of hospitals and medical centers around the world are investing in educational and management programs enabling them to be certified, opening new doors to international patients with reimbursement at a lower cost to public and private payors.

In theory, comprehensive privacy compliance, like HIPAA, and standard system protocols, like HL7, enable software that allows for system integrity and software integration so the process of providing care can be strengthened, errors reduced, and costs controlled.

In practice, however, the pervasive nature of the combination of all these technologies, combined with overlay Electronic Medical Records (EMR), e-prescribing, real time voice, video and messaging applications runs the risk of turning doctors, nurses and others who entered the medical profession to help human beings into “humanoids” who spend more time at keyboards, computers, smartphones and other devices, typing and tapping throughout their shifts.

For many, so much time spent on the “digital paperwork” (along with actual paperwork which may also be required) contributes to burn-out and a sense of being overwhelmed by tasks so much so that there is less and less time for interacting with patients and thinking through problems with colleagues to serve those patients better.

As software improves following decades of this major move to the digitalization of providing and paying for care, we believe it is a perfect time to step back and rethink the critical importance of “human factors” in healthcare.

Human factors bring us back to the fundamentals of quality care – starting with listening, engaging in conversation, showing compassion, and being able to read the non-verbal clue patients share.

As more mundane tasks are automated, and new models for teamwork and management of necessary administrative functions are innovated, we have a moment in time to rediscover the joys and benefits of being able to spend time with patients and their families during traumatic times and over the long haul when managing chronic conditions.

All those of us who work in medical settings are deeply familiar with the increasing requirements for more documentation and administrative work designed to comply with government regulations and healthcare insurance rules.

In theory, major frameworks like the Joint Commission (JC) in the US are setting common standards to improve the quality and safety of care, with an understandable focus on reducing returns to the hospital for infections or other complications. The JC has been so successful, as far as measured results, that hundreds of hospitals and medical centers around the world are investing in educational and management programs enabling them to be certified, opening new doors to international patients with reimbursement at a lower cost to public and private payors.

In theory, comprehensive privacy compliance, like HIPAA, and standard system protocols, like HL7, enable software that allows for system integrity and software integration so the process of providing care can be strengthened, errors reduced, and costs controlled.

In practice, however, the pervasive nature of the combination of all these technologies, combined with overlay Electronic Medical Records (EMR), e-prescribing, real time voice, video and messaging applications runs the risk of turning doctors, nurses and others who entered the medical profession to help human beings into “humanoids” who spend more time at keyboards, computers, smartphones and other devices, typing and tapping throughout their shifts.

For many, so much time spent on the “digital paperwork” (along with actual paperwork which may also be required) contributes to burn-out and a sense of being overwhelmed by tasks so much so that there is less and less time for interacting with patients and thinking through problems with colleagues to serve those patients better.

As software improves following decades of this major move to the digitalization of providing and paying for care, we believe it is a perfect time to step back and rethink the critical importance of “human factors” in healthcare.

Human factors bring us back to the fundamentals of quality care – starting with listening, engaging in conversation, showing compassion, and being able to read the non-verbal clue patients share.

As more mundane tasks are automated, and new models for teamwork and management of necessary administrative functions are innovated, we have a moment in time to rediscover the joys and benefits of being able to spend time with patients and their families during traumatic times and over the long haul when managing chronic conditions.

Unifying Quality Care Globally: Thousands More Hospitals Seeking Joint Commission Accreditation Outside the US

Hospitals and healthcare facilities around the world are investing in earning their Joint Commission International accreditation for many good reasons.

The hundreds now being accredited each year are recognized for quality based on metrics developed over the last few decades and applied primarily in the US, where insurers from the government (through Medicare and Medicaid) to massive commercial payors aligned to create uniform quality standards and metrics designed to decrease returns to hospitals and clinics by reducing complications and related costs.

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It is no easy feat to become accredited in the US, or elsewhere, as standards are high and the collection of metrics and methodologies for reporting can be daunting. But the rewards for patients, for medical professionals, for operators and administrators and especially for society are great.

New revenue opportunities for organizations outside the US are also great, particularly as insurers in the US are starting to recognize the cost for many procedures and treatments can be dramatically lower, causing the industry to rethink options including subsidized medical travel.

The cost of care varies greatly, and until more and more internationally-based hospitals can achieve accreditation, the opportunity to reduce overall cost-of-care in the US will remain limited, which is driving a tremendous amount of demand for experienced and skilled Joint Commission experts, especially in China, India and other large countries with increasing numbers of doctors and nurses coming out of medical schools.

Here’s a comparison of costs for procedures as an example of the economics behind more and more interest in establishing formal relationships between international hospitals and payors in the US:

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While “medical tourism” has been primarily understood as a reasonable solution for voluntary, patient driven procedures including plastic surgery and medical weight loss, we are starting to see steady increases in referring patients for heart and orthopedic surgeries which are being performed at a fraction of the cost for the identical procedure in the US.

This all sounds good, until complications set in, and patients who traveled a great distance have a bad experience and need additional procedures or expensive corrective healthcare to solve for infections or other “unexpected consequences” – and thus, the movement to identifying hospitals for Joint Commission initiatives and ongoing compliance continues to pick up steam.

Different hospitals employ different strategies to prepare for the JCI process, but all are driven is driven by a desire to serve their primary populations better, to improve outcomes, to improve their operations and economics, but also to attract international acclaim and referrals.

Important organizations including the Joint Commission International (JCI), founded in 1994 by The Joint Commission, are making accreditation on a global scale possible. As of 2018, JCI has helped implement programs in more than 90 countries, working alongside other non-profits like the World Health Organization. Remarkably, JCI is growing at an average of 20 percent annually, which is itself a key metric indicating the health of the accreditation movement.

Ultimately, all agree, one of the main benefits of JCI accreditation is in building a culture of accountability within a hospital. “It makes people uncomfortable to report mistakes, but you need an open and transparent environment,” says Pan. Although achieving accreditation back in 2005 took a lot of effort and resources, she adds, now JCI’s international best practices have become a natural part of hospital operations.

According to the JCI website, health care staffing firms seek certification because it:

  • Demonstrates commitment to a higher standard of service
  • Provides a framework for organizational structure and management
  • Provides a competitive edge in the marketplace
  • Enhances staff recruitment and development
  • Is recognized by insurers and other third parties
  • May reduce liability insurance costs
  • Certification process

Best practices and better patient outcomes make the effort to become accredited, and remain accredited, worthwhile.

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Fundamentally, the process, which requires a significant commitment of not just time, but cultural change and awareness, can change the entire future of international hospitals, giving those who earn and continue to comply the kind of “five-star” rating that the finest restaurants, hotels and airlines benefit from. Only in this case, that rating opens the doors not only to building consumer confidence, but institutional confidence with a stable source of funding when payors create billing relationships.

Hospitals must work very hard with organizations like JCI, including committing to up-front fees for assessments, consulting, and access to systems and technologies, as well as considerable time from leadership and administrative teams.

Preparing for the inspection process can take up to two years, with the accreditation process covering everything from clinical outcomes and safety to sanitation and environmental policies and practices.

One hospital in China reported growing from $30 million in revenue in 2005 to $150 million in 2018 (Beijing United Family Hospital).

Operating costs due to reduction in errors and readmissions are also having a measured impact on economics.

With upfront consulting fees for professional assessments of up to $100 thousand, including time, travel and accommodation costs, the greater expense can often be the time it takes internal staff, trained in the new quality measures and reporting, to effect cultural change. It is not easy to go from hiding mistakes to openly tracking and training staff on how to avoid mistakes as part of an ingrained commitment to providing the highest, most measurable levels of care.

Ongoing maintenance can be a challenge as well, given that assessments happen every three years. Embedding the collection and analysis of data into the daily workflows can be done more easily with software and training, helping accredited hospitals avoid having to “gear up” to be re-accredited.

Finally, for medical professionals – doctors, nurses, nurse-practitioners and specialists – their ability to work collaboratively and travel themselves on medical missions is enhanced as more and more hospitals and healthcare facilities are speaking a common language.

Across the continuum of people, a quality JCI process includes leadership, human resources, performance measurement metrics documents, data input, information management, reporting and readiness for audits.

These three standardized performance measures are the backbone of every successful accreditation and re-accreditation platform:

  • Do not return rate for clinical reasons
  • Do not return rate for professional reasons
  • Completeness of personnel file

The oldest and largest standards-setting and accrediting body in health care in the United States, the Joint Commission evaluates more than 20,000 organizations and “inspires them to excel in providing safe and effective care. Joint Commission Resources (JCR) is the official educator and publisher of Joint Commission standards and serves as an expert resource for performance improvement. JCI is a division of JCR.

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Physicians Must Listen to Patients – And Believe Them

It seems every time I turn around, I meet another person who had a deeply troubling experience with doctors who failed to listen, failed to believe, and consequently failed to heal.

The healthcare system is under a lot of pressure, whether from changes to how care is insured, to pay for performance guidelines, to increasingly regulations associated with patient privacy and safety, to over-crowded and understaffed emergency rooms, clinics and hospitals.

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While it may seem to be more efficient to spend less time listening to patients, and easier to “write off” their own feelings about what may be going wrong with their body, it may ultimately reduce time to listen carefully and allow the patient to guide the diagnosis.

My own family members have recently been ignored when we articulate our symptoms, our concerns, our own ideas of what may be going on – given our increasing knowledge through access to more information, our personal knowledge of family genetics and, our sense of how we are living and what we may be exposed to in the environment and awareness of context and change on our health, one would think physicians would be aware of the value of our information and instincts.

Of course, many physicians are great listeners and healers as a result.

Those who ignore patients and fail to trust them can cause short-term and long-term harm.

In my family’s case, we had to research new specialists knowing we were right – and we were in the end, 100% correct. The cost for us? Delays in getting the right treatment, and emotional stress and frustration for months, even years, as certain doctors simply refused to believe what we shared.

A very successful physician we know diagnosed herself with a bacterial infection which started in her sinuses, and eventually moved into her heart. For months, she went to different doctors and specialists, explained her symptoms, shared her diagnosis and was literally ignored, time after time.

“There is nothing wrong with you,” multiple doctors said, “it is all in your head.”

Just last week, when she could no longer breathe, exercise, think or work, she broke down in front of a colleague, who referred her immediately to a nearby hospital and a particularly great doctor who saw her and immediately admitted her for three days of intensive antibiotic treatments through an IV. This doctor may have saved her heart and life – and it all started with listening – and believing.

One couple here in NYC started a foundation designed to save babies lives after their 8-day old daughter was misdiagnosed after several emergency room visits, by doctors and nurses who told the young mother her child only had a common cold.

One ER doctor even said: “Is this your first child?” When the mother answered “yes” the doctor said, “You’re overreacting.”

They sent the mother and her daughter home that evening, and in the morning, their daughter passed away.

The actual diagnosis?

A viral infection.

There is nothing more devastating than losing a child, and nothing more cruel than dismissing a mother.

This family has now raised tens of millions of dollars to bring neo-natal training, equipment, programs and more to dozens of hospitals in the US and abroad, including several of the largest children’s hospitals in the world.

Modern medicine’s true healing potential can only be achieved when medical professionals have the time and capacity to truly listen to patients, hear their stories, and learn not only what’s the matter with them but also what matters to them.

Hurried care incurs hidden costs and while it may save money in the short term, it wastes money over time and renders real damage to individuals and families.

Listening closely to patients communicates respect and builds trust. Collaboration delivers a shared plan that patients will be more likely to commit to. Reduction of errors and the ability to remain agile and respectful in the process of providing care improves outcomes.

Medical decision making done in concert with patients can be incredibly efficient, and meaningfully authentic.

There are many solutions to ensuring physicians have time to spend listening, including improving systems that reduce paperwork, delegating lower-level tasks to non-physician team members, scheduling appointments more efficiently, and using new secure messaging capabilities that work for the “mobile generation.”

Listening – and believing – may seem elusive, but in fact it is very achievable an it is what patients wish for.

 

 

Patient Safety Is A Team Sport: How Care Collaboration Can Reduce Errors and Improve Patient Experience

Patient Safety Awareness Week (March 11-17, 2018), which the Institute for Health Improvement (which merged with the National Patient Safety Foundation last year) has been coordinating for the last fifteen years. The IHI cites studies which suggest that medical error and preventable harm remain major sources of injury and death among patients.

A recent national survey conducted by the IHI/NPSF Lucian Leap Institute and NORC at the University of Chicago found that 1 in 5 people reportedly experienced a medical error in their own care, and one-third reported an error in the care of a close relative or friend. Of those who experienced errors, 73 percent said the error had a long-term or permanent impact on the patient’s

physical health, emotional health, financial well-being, or family relationships

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“Making sure patients and families feel that it’s okay to speak up and ask questions is really a critical element in patient safety,” said Tejal K. Gandhi, MD, MPH, CPPS, Chief Clinical and Safety Officer, IHI. “Even health professionals sometimes fear speaking up, and that’s directly tied to the culture of the organization in which they work. In order to improve, health care organizations need to see flaws or gaps in safety, encourage people to report problems when they see them, and take action to correct them.”

Patient Safety is a Team Sport 

When care teams, across different disciplines, work more collaboratively together, mistakes can be reduced, and patient satisfaction and the experience of their friends and families can be dramatically improved. The experience of medical teams and staff is also improved when doctors, nurses, certified nurse assistants, technicians, anesthesiologists, physician assistants, are able to communicate more systematically and easily.

Better communications is possible now with better technologies, artificial intelligence (AI), the implementation of electronic medical records, but we have found in completing projects at many large hospitals that culture may play the most important role.

The best hospitals in the US and around the world pay close attention to culture and communications, particularly in the most intense areas (emergency rooms, intensive care units, operating rooms) and the most delicate situations (cancer diagnosis, chemotherapy, radiation – for adults and children).

Cohesive teamwork is all about improving communication around the circle of care, reduces errors, improves patient outcomes, reduces costs through decreased length of stay, and results in greater satisfaction scores across the board (patients, families, staff).

The most enlightened and successful hospital administrators are those who see their role as “Chief Experience Officers” whether they are CEOs, Presidents, Department Chairs or other key leaders.

More and more care “teams” are being assigned to shifts together, rather than random scheduling, as these teams learn to work better and better as a unified “organism” able to understand and appreciate each other’s skills and approaches, and building respect, rapport and pride over months and years together.

Teaming Up for the Greater Good

We’ve seen improvements through our work in many areas, including:

Emergency Care, where clear and steady team communications can make a difference in minutes or even seconds and crisis resource management principles pay off in better patient outcomes

  • Intensive Care, particularly when teams are managing acute trauma patients with severe injuries and where long shifts are sometimes unavoidable and team members backing each other up makes life easier for all those in the business of saving live
  • Respitory Care, including improvements in ventilated patient care and faster reduction in the reliance of mechanical ventilation
  • Psychiatric Care, including stress response to surgery and greater preparation for discharging into a positive home or long-term care environment
  • Neuroscientific Care, including hospital stays following neurosurgery, where compassion is one of the most highly valued traits by patient’s friends and family

Patient Safety Awareness flows together with Patient Experience, and when hospitals put collaboration and communications together with culture, everybody benefits. These are conscious choices, and this week while we all get together to shine the light on patient safety, we look to the leaders and visionaries running some of our largest and most successful hospitals, hospital systems, medical centers and medical universities to set the examples, and create the models for more efficient and more effective healing.

 

 

Pain Free Living Isn’t Really Living

We are facing a crisis in America, and in other countries around the world, with the rise of Opioid and other pain medication addiction. While our personal and professional definitions of pain vary dramatically and often measured on a subjective scale of “1-10”, we are often focused on trying to eliminate pain, rather than manage it.

 Pain is a symphony – a complex response that includes not just a distinct sensation but also motor activity, a change in emotion, a focusing of attention, a brand-new memory.” DR. Atul Gawande

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Emotional distress, pain and discomfort is part of human experience and eliminating it or extreme avoidance makes us vulnerable to human exchange and effects not only our social and emotional intelligence but also our cognitive development. Pain to some extend builds resiliency.

Certain types of discomfort and pain, as a challenge to any organism (with the right context and dosage) can in fact lead to residency and strengthen the organism.

“Pain is a part of the human experience and has a function. Its re contextualization, re framing, and management for improving people’s lives seem crucial but this should not be confused with the pursuit of the elimination of pain as a part of human experience.  Neuroscience research findings suggest that experiencing pain and having empathy is neurologically connected. In fact, dulling pain may also reduce the level of empathy. Pain perception happens to engage some of the same neural pathways in the experience of empathy and it activates similar networks as when we ourselves are in pain.” DR.Kamran Fallahpour

Physical pain is a helpful indicator when something is wrong with our bodies. It’s healthy to feel pain at certain times, as this is one way our body communicates to our brain that we need to walk more gently if we feel a sprained ankle, need to change the way we are eating if we experience heartburn, need to drink more water if we are feeling faint, and so on.

When we learn to listen to our bodies, and lie down when we have a headache, rather than reaching for a pharmaceutical, we are treating ourselves naturally, without overly relying on over-the counter meds.

In more serious circumstances, when we are prescribed pain medication after a surgical procedure, we certainly can heal faster by being able to rest and recover, or to take part in physical therapy needed to reduce the chances of scar tissue building up or other outcomes. That said, when we listen to our bodies, even after having surgery and completing physical therapy, we can wean ourselves off pain medication as we feel stronger and more able to live normally – without becoming addicted to the idea that we can live pain free.

We can even apply the idea of learning to “live with pain” when we have chronic conditions.

According to a 2011 report by the Institute of Medicine, Relieving Pain in America, there were 100 million Americans dealing with chronic pain in 2010 alone and this number is growing as the population ages. The costs associated with chronic pain, usually defined as pain lasting longer than three months and without a clear prognosis, can be astronomical and not just due to the high price of pharmaceuticals.

One estimate by health economists at John Hopkins University puts the annual economic costs linked to chronic pain at $635 billion annually, far greater than for cancer, heart disease, or diabetes.

This includes direct costs such as health care and indirect costs resulting from lost work days or productivity, and this loss of income due to “over-medicating” can cause major crises for individuals and families

There are many alternative and highly effective ways for people to deal with pain, even chronic pain, learning to manage and understand the signals of pain as part of living a full life and strengthening themselves physically and emotionally.

Natural ways to manage pain include:

  1. Plenty of exercise and “fresh air” – even a short walk outside can bring more oxygen and a new point of view into the life of someone experiencing pain
  2. Yoga and other exercises which can be guided by professionals who understand how to set up appropriate stretching and light movement programs
  3. Nutritious eating, with fresh local ingredients, balanced meals, protein for rebuilding muscles, and more
  4. Hydrating: water, water and more water can help keep our systems cleansed and running optimally
  5. Certain kinds of healthy teas, which bring comfort and relief, particularly herbal teas which can aid in breathing while also providing an enjoyable, fragrant pause to a stressful day
  6. Heat and cold therapy, which doctors and nurses can provide guidance for
  7. Simply soaking in a bath or taking a long shower
  8. Massage therapy, available in any city or town, with registered therapists who can address local and general pain
  9. Meditation of many different kinds, which can calm the mind and body for short or longer periods when pain seems to be increasing
  10. Sleep, sleep and more sleep: there is nothing like restorative sleep

Of course, there are simply some conditions where physical pain can become unbearable, and in these cases, physicians can prescribe appropriate medications as well as guidance on how to use those medications and how to avoid addiction.

One of the great benefits of learning how to manage pain in more healthy ways is become more in-tune not only with one’s body, but the world around them!

Who wants to go through life so medicated that they cannot actually experience life?

This is particularly important for our children and young adults, who are sometimes over-protected by parents having a hard time seeing their children experiencing discomfort.

Rather than reaching for medications, we encourage parents to understand the role of pain, how to manage it, tolerate it and how to communicate about it as signals of pain are important in early diagnosis of serious problems.

By teaching our children that discomfort, like joy, and sadness, like happiness, are all part of a rich life of being fully human, we are helping them build resilience which will serve them throughout their adult lives, and serve following generations, breaking the cycle of the “pain free” myth that is keeping us from aware and mosaic lives.

Patient Experience in the 21st Century

To fully envision what defines a great patient experience in this new century, it’s important to understand how human beings are now living, what their expectations are, how their behaviors are influenced by media, technology and changing economics, and communications is woven throughout health journeys which are becoming increasingly individualized.

 

Patient Experience

To fully envision what defines a great patient experience in this new century, it’s important to understand how human beings are now living, what their expectations are, how their behaviors are influenced by media, technology and changing economics, and communications is woven throughout health journeys which are becoming increasingly individualized.

Consider precision medicine, for example. Today, patients now ask their doctors if their cancer or other illnesses are related to their genetic makeup. They ask if their condition could have been predicted and prevented. They ask if there are new treatments for diseases thought to be impossible to cure.

More frequently, patients are asking about alternative medicine, naturopathy, homeopathy, meditation, physical therapy prior to taking a risk on surgery.

They and their families are concerned about the costs of care, the complexities of insurance programs, the costs of in-patient vs. out-patient care, and so much more.

And now that we have crossed the chasm into the general availability of Electronic Medical Records, including immediate access to their blood tests, scans, visit reports, scrips, the 21st Century patient is increasingly participating digitally, whether from their desktop computers or their smartphones, and while this can be extremely empowering, it can also be daunting.

Daunting as well is the ocean of information on the web – some of it accurate, some of it inaccurate – which patients and their loved ones often become immersed in, particularly when they are diagnosed with an unusual disease or rare form of a family of diseases.

What does all this mean for doctors, nurses, specialists, caregivers and administrators?

It means that the bar is being raised higher – which is good for society and the healthcare profession, but which can be difficult for institutions to keep up with, particularly as budgets are strained, and pressure is on to remain competitive, highly ranked, safe and less prone to malpractice and other legal actions.

While there are many exciting new technologies coming out that can help automate routine tasks, analyze data quickly, provide better self-service for patients and more – freeing up professionals to spend more time with patients – based on my many years of consulting to hospitals and medical schools and medical centers – a positive experience for patients and their families always comes down to the human experience.

What we used to call “bedside manner” is now a 360-degree view of good manners from the moment a patient realizes they have a new pain and contacts their general practitioner all the way through to leaving a hospital experience and returning to home and future health.

The patient journey, particularly because patients have so much more access to information and process, can become far less mysterious, frustrating and scary, but only when they are guided by caring human beings who chose their profession because they genuinely wish to help, heal and comfort people.

Over the last few decades, the market’s recognition and acknowledgement of patient experience has been significant. We’ve witnessed tremendous growth and serious investment by organizations committed to becoming better and more competitive through excelling at experience. I have had the honor to develop and manage many programs and have seen the impact patient experience initiatives have not only for the patient, but for the entire care collaboration team who very often desire to provide a better experience, but are held back by cultural issues, negative behaviors, lack of funding and tools, and environments where they are often overworked and underpaid.

The Beryl Institute, a global membership community of over  55,000  members engaging in efforts to improve the experience for all in healthcare has established a deep store of a community-validated and developed body of knowledge; the expansion of research represented in the submissions to and readership of Patient Experience Journal (with articles now downloaded 10,000 times per month in over 190 countries and territories); and launched an independent entity, the Patient Experience Institute.

In 2017, they graduated approximately 500 individuals as Certified Patient Experience Professional (CPXP) – a small number relative to the need, but a great start.

They also launched the Patient Experience Policy Forum (PXPF) to begin efforts at advocacy and action that support findings from a study released last year.

A few highlights:

  • In their patient experience movement and in the data that frame its efforts, they are seeing fundamental shifts in behavior, practice and perspective
  • They call out the shift in the habits of people and organizations in healthcare
  • They are witnessing an exciting alignment around the idea that patient experience matters

 

After interviewing nearly thousands of professionals, across all segments, 26% of respondents identified themselves as having “well established” experience efforts, while just 1% offered they had “not yet started.”

The majority of respondents, 56%, replied they had an established effort that was “making some progress,” while the remaining 18% said they were just getting underway.

“These numbers reveal that organizations are no longer thinking about efforts to address experience but are downstream in considering what they need to do to address it,” the report says. “The questions, as a result, will now be less about how to get started in setting up experience efforts to what priorities and practices lead to sustained success. This distribution reveals a new and significant dynamic for patient experience efforts to consider in both how they maintain focus and commitment as well as reinforce relevance and show impact.”

The full report, sponsored in part by Philips Corporation, is available for download here.

We applaud the efforts of the Beryl Institute and others who are studying the global landscape and doing important work in building a sustainable community around our opportunity to improve patient experience while, in parallel, we improve the entire medical and wellness system.

What is very clear is that when new models are built, those which succeed will be those which focus on the patient’s physical, mental and emotional journeys – while also “caring for the caregivers” – creating vibrant, efficient, humanized hospitals and other medical settings.

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In future posts, I will share insights and ideas on how we can, together as an industry and as individuals and institutions, reinvent healthcare delivery with the patient at the center – how technology can help, how cultural investment can help, how training and certification can help, and how all of this can be done with brilliant economic outcomes, and most important – brilliant health outcomes.

Building Emotional Immune Systems

Part of building up the physical immune system is the ability to live in the real world fully, being exposed to certain risks (like germs or viruses) and allowing the body to adapt to protect itself – but without having to live like the “boy in the bubble.”

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There are millions of posts on how to fight disease and strengthen our physical immunes systems on the Internet. A Harvard Health Publishing article, updated in October 2017, reports that “On the whole, your immune system does a remarkable job of defending you against disease-causing microorganisms. But sometimes it fails: A germ invades successfully and makes you sick. Is it possible to intervene in this process and boost your immune system? What if you improve your diet? Take certain vitamins or herbal preparations? Make other lifestyle changes in the hope of producing a near-perfect immune response?”

How can this apply to our building the emotional immune systems of our children and young people?

In a world that can be stressful, with terrorist incidents, bullying, and the inevitability of sad events in all our lives, building up an ability to absorb and even embrace the sadness and confusion life brings with it is what we like to call a very positive emotional immunity.

Boosting our physical immunity is so attractive that it has created multi-billion dollar businesses for herbal supplements and more, and still immune system perfection has proved elusive.

Why?

Because both physical – and emotional – immune systems are systems – with many dependencies and a need to develop harmony given multiple factors.

“There is still much that researchers don’t know about the intricacies and interconnectedness of the immune response. For now, there are no scientifically proven direct links between lifestyle and enhanced immune function,” the Harvard Health Publishing article says, “But that doesn’t mean the effects of lifestyle on the immune system aren’t intriguing and shouldn’t be studied. Researchers are exploring the effects of diet, exercise, age, psychological stress, and other factors on the immune response, both in animals and in humans. In the meantime, general healthy-living strategies are a good way to start giving your immune system the upper hand.”

What are the healthy-living strategies parents and other grown ups who influence our children and young people can invoke to help build emotional strength?

Here are a few tips:

  1. Talk openly about feelings, including those we often wish to hide away: fear of disappointment, anger, resentment, frustration, rejection. Take respectability for those feelings.
  2. Avoid doing their chores (cleaning their rooms, getting them ready for school, reminding them of their medication, homework, school projects and so forth)
  3. Offer help only when you are asked to
  4. Avoid protecting them from the truth of life, even if it is difficult: for example, when an incident occurs in your town, for example an act of violence in a school, don’t be afraid to have a conversation about what this means.
  5. When your family is faced with a crisis – whether an illness, a death in the family, a financial crisis or other difficult situation, ask your child or teenager how they are experiencing the journey. Allow them to participate in the process. Be there for them when they need your time to work through what can often be painful, and at the same time moments of self-awareness and discovery.
  6. Practice a healthy lifestyle – eat well, exercise, go outside and move together as a family and as friends, get enough sleep, and otherwise enjoy the good things in life; the same activities that help strengthen our physical immune system also help children and young adults have the energy and focus to be able to process life’s more challenging events. Engage and empower them to experiment a healthy life style.
  7. Set the example – kids look up to their parents and close-in relatives and friends; when they witness thoughtful reactions to negative events, they are learning how to think and feel more deeply, to neither go into denial, nor respond with violent outbursts or other “wild swings” of behavior.
  8. Encourage them to develop a healthy “social network” or support system (family member, relatives, family friends, childhood friends)
  9. Teach them taste happiness by hard work and responsibility
  10. Celebrate their resilience after a fall.

Building emotional immunity is all about building internal strength, and this will serve children and young people throughout their lives.

The importance of emotional immunity, as is the case with physical immunity, becomes even more important as we age.

Appreciate the connection between emotions and physical health as there are important linkes between mind and body.

Many illnesses have been scientifically linked to emotional stress, including heat disease, one of the most prevalent causes of premature death. Scientists continue to study the relationship between stress and immune function.

To boost physical healing, we need to reduce the amount of stress, fear, and conflict and increase the amount of love and happiness in our lives. It helps to plan a purposeful day, performing altruistic acts, doing volunteer work, developing empathy and kindness towards others, especially the elderly. Love and happiness are instinctively felt when we give love and happiness to someone else.

And to boost emotional healing, we can learn to manage our stress and help our children manage their stress – not by pretending bad things don’t happen. They do. Rather, we manage stress by engaging in how we are feeling about our disappointments, our losses, and embracing “the perfectly imperfect” nature of life, from birth to death, in a world which is forever changing.

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